The Trouble With Autism

The Trouble With AutismWe’ve had a crap week, they happen to everyone, and once you have kids you come to expect them every now and then. The trouble with autism is that your definition of a good week is what most other families would consider to be a crap one.

When you’re an autism family, there is no capacity for extra crap on top of the usual crap. Head lice and worms, and other people’s minor inconveniences might just push you over the edge. 

super crap week is just too much, because everyone is ragged and running on empty already. Exhausted from the night wake ups and the 5am starts.

You’re at the end of your tether come 9am. By which point you’ve already drunk your ideal coffee quota and are pouring yourself a third cup.

As an autism parent, every ounce of strength goes into meltdown aversion, making sure potential triggers are kept to an absolute minimum. When a meltdown comes, every ounce of strength goes into damage limitation and ensuring that everybody is safe.

You’ve researched and consumed knowledge that might help your child to the point of making your head feel like it will explode. It goes without saying that you’re their biggest advocate, always have been and always will be.  

My house rocking the just burgled look... again!
My house rocking the just burgled look… again!

Although you know exactly what you should and shouldn’t be doing, you still find yourself overly emotional far too often. Either in a rage or floods of tired tears, because putting out the fires day in day out drains the life from you.

People tell you they understand, but continuously say things that leave you feeling that they just don’t get it. They mean well, you know they do, but their throw away comments make you sad.

The trouble with autism is that no one could ever prepare you for it. It has hit you with force, like a big mack truck. It is relentless, and knows no boundaries.

The trouble with autism is that it has the ability to make you feel like a superhero one minute, and a complete failure the next. Ultimately autism doesn’t care one iota for your fragile state of mind.

The trouble with autism is that one wrong move and the whole house of cards comes tumbling down!

Open Letter to Autism Mama

BTBY stack of bookson-autism-and-hard-work-finally-paying-off

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