Autism Awareness Day 2019

World Autism Awareness Day 2019: What I Know about My Daughter’s Autism

There are many lessons I’ve learnt since my eldest daughter Polly’s autism diagnosis in 2015. Some things have come fairly easily, others have felt like a perpetual battle. For world autism awareness day 2019, I thought I’d share some of these with you. Sending love to anyone struggling, I hope this piece helps. Almost all meltdowns and episodes of ‘bad behaviour’ stem from anxiety It took me a while to figure out that every single time Polly acts up, there is a deeper reason. As all autism mama’s and papa’s know, meltdowns are not the same as temper tantrums, they come …

high cortisol levels

Dear Sad Mama, You Are Not Alone

Hey Sad Mama, I see you. I hear you. You are not alone, truly you aren’t. They say it’s good to talk, that a problem shared is a problem halved. They say we need to get out of our heads and put our mental health problems out there for all to see. They say we should tell anybody who cares about our feelings. That we should put them on the table and be explicit. Trouble is, the advice is getting a bit confusing. Unless we have people we can wholeheartedly rely on to help pull us out of our deep …

eldest child is autistic

When Your Eldest Child is Autistic

When your eldest child is autistic things don’t follow the standard format. You can’t rely on them to lead the way for your other kids, and some days, it hurts like hell. Oh I know what you’re thinking. That I should lower my expectations, and not put too many demands onto any of their shoulders (especially Polly’s). They’re just kids after all. Truthfully speaking, I do feel this way a lot of the time. We live in the real world though don’t we? And on the super challenging days not expecting anything and not being tempted to future gaze just isn’t …

Random Musings of an Autism Parent

Random Musings of an Autism Parent

Stress, so much stress. Every day, in the face of it, you try your best. But what if it’s not enough? You fret, you worry, you toss and turn at night. The cortisol pumps in your head, making it feel like it’s going to explode. You try not to yell, you don’t want to yell, but you can’t help yourself. Unless you live it, you will never understand what it means to be an autism parent. The highest highs, and depths of despair lows. External assistance so thin on the ground, budgets slashed to the bone. You don’t qualify, you’re on …

We Need to Stop Fighting Over Who Has it the Hardest 

We Need to Stop Fighting Over Who Has it the Hardest 

Earlier this week I posted an article about how hard it is not being able to take my autistic daughter’s sadness away (you can read it here if you like). Don’t get me wrong, there are many other things that are hard. As my children grow older though, I’m learning that the very hardest thing is seeing them suffer (in any capacity) and not being able to do a damn thing about it. I was feeling super low I posted the blog on one of the home ed Facebook groups I’m part of. Lots of parents in the group have autistic …